sharing a nice post about our hope to find a cure
by Tori Anderson
posted Jul 23 2013 11:08AM
taken from a recent facebook post by brotha bill
Scleroderma is a rare disease.. but it's still amazing to me how we keep learning of more people that have it. When Tori, Joe Dill, a handful of others suffering with the disease and couple family /friends started the walk with tori (Tori's Walk); our hope was that Wayz's Tori Anderson mini regional following from the band Possum Holler and her being a well known radio personality might bring attention to the unknown disease and the need for a cure. For two years now the "Walk with Tori" has done just that, introducing the 4 state region to the terrible word scleoderma, and more understanding about it as well as sending over $70,000 to the Scleroderma Center. We've also had 100's of friends and family attend the Sunday event and countless businesses donate to the cause.
This event isn't about my sister -in -law Tori. It is about 300,000 people who have the potential for an early demise because of scleroderma.. It's about the growing # of people she's met that have the disease (she can name them) and those that she's seen lost. (she can name them too). It's about the families that are seeing the pain of it and it's about how much we see Tori care about this and keep going in spite of her own pain... Okay, for our family it is about Tori.. and how we want her to be cured.
She and a few others suffering with the disease put the walk together.. Tori's name is on it by strategy and so I am sure she feels the pressure every year for it to be successful. Success is based on how much money as we can get to the Scleroderma Center in Pittsburgh.. (Our main goal) We want the work that the Doctors are doing there to continue. They have made headway and they are our Hope! The work they are doing could also benefit many others with autoimmune diseases so this could be far reaching.
We need all the support we can get.. The Walk with Tori group is not huge..maybe less than 8 people, trying their best to do a good thing. Any and all help is welcomed and appreciated and most of all, come out September 8th to the Walk with Tori.
tori... a merle girl